Issue Brief: Care for the Caregivers

Thousands of parents of children with special health care needs fall into North Carolina’s health insurance “coverage gap.”

October 2021

More than 1 in 5 children in North Carolina have special health care needs – including chronic physical, developmental, behavioral, and emotional conditions. For many parents, grandparents, and foster parents, caring for a child with special health care needs can be a full-time job. Unfortunately, that job is one that does not usually involve a salary or health benefits.

In June 2021, NC Child conducted a statewide survey asking parents of children with special health care needs about their access to care. This issue brief from NC Child shares survey results, and explores the role that affordable health insurance could play in supporting families of children with special health care needs.

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